Lousy News

We recently found out that UNOS (the national organ donor group) turned down our appeal to get a year back on the transplant list. They'd turned us down before but our surgeon wrote a letter and typically his appeals are successful....but not this time. The cut off time on transplant failure is 90 days and the kidney failed at 92 days....and a deadline is a deadline.

I am tremendously upset about this for several different reasons but of course that doesn't do any good. Dan is being the calm, rational one lately. It doesn't seem like any aspect of this transplant has gone well.

It also doesn't help that Dan is having a tough time right now with fluid collecting and pressing on his lungs which causes him to be short of breath. He's also having trouble with "coverage" which is getting all the toxins out of his blood. However, his nephrologist is all over these problems and we have hope that they will be resolved.

Meanwhile Dan is keeping on.... He is taking some of his Civil War collection to Alma High School today to show Christopher's American History classes and give a guest lecture. He's a tough guy.