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Dan's Kidney

Friday, October 27, 2006

Friday Update

Well, to put everything in a nutshell, not much has happened since my last post. I am continuing to battle the edema in my legs...one good thing....the swelling in my right foot has gone down and the leg is slightly smaller. My abdominal and neck incisions are nearly healed...I know, its been a long time...the doctor told me because of my age, immune suppression, and diabetes it would take a long time to heal. I hope that things progress more quickly because Chris' (our youngest son) wedding in Vegas is only 4 weeks off.

Yesterday we got a minor scare....the transplant center called and said that my creatinine and bun was elevated. That can be a sign of rejection beginning; however, it can also be caused by dehydration. So, I proceeded to drink 4 liters of fluid and today my creatinine and bun were better. Hopefully, things will continue to improve.

Wednesday, October 11, 2006

The Wedding Dress

Do to the large number of inquiries, the answer is yes Sandy found a beautiful blue and black swoopie thing-a-ma-jig, purse, and shoes....I'm sure that she can give you a more accurate description.

Tuesday, October 10, 2006

Back To The Future....

Yesterday it was back to UNMC for my first checkup. As we had a 9:30 lab scheduled, we arose at 5:00 am and headed for Omaha. I drove for the first time in 5 weeks and I realized that I had not missed it at all. We arrived on time and the lab went fine....perhaps this visit would go smoothly. Sandy and I had an hour to kill, so we went to the cafeteria and had coffee and rolls. We decided to report to clinic early and much to our surprise, we were taken back immediately to see the docs.

The first person we saw was a 3rd year resident who asked the usual questions including "why are you back so soon." I replied that I was back because the surgeon wanted me back in two weeks. Little did she know that the truth was that I missed the Lied Center so much that couldn't bear the thought of being away for another day. Yeah!!!! After this highly investigative exchange, she left and a couple of minutes later Dr. Mercer a transplant surgeon came in. Dr. Mercer was a very personable and competent surgeon that had just returned to the center after practicing in Canada for several years. He thought that my labs looked very good and that my incision was healing well. In fact he wanted to remove the staples and my Quentin Catheter that was implanted in my Jugular vein.

The nurse came in and proceeded to remove the staples....it was quick and produced very little pain. I couldn't believe that everything was going so smoothly. The resident came back in and gathered the equipment to remove the catheter, a very simple nearly painless procedure that would take 5 minutes...yeah right!! A Quentin cath is a six inch silicon rubber tube the size of a pencil that is connected to a plastic sheath with a velcro like collar that seals it to the body just under the skin of the chest. It is inserted into the vein with a very large needle connected to the plastic sheath, the needle is removed leaving the sheath and velcro seal under the skin with a simple stitch holding it in place.

The removal involves snipping the stitch and pulling on the sheath. In theory the velcro collar which has now grown to the tissue of the breast separates and remains behind allowing the sheath and tube to easily be removed with a slight tug. Well here is where my fabled bad luck returned. The resident snipped the stitch and tugged on the sheath....and tugged harder on the sheath.....and then tugged very hard. She then went to tell the nurse to get Dr. Mercer who she told about the problem. He said no problem that he had done hundreds of these things and that he would take over. So, he tugged and tugged, and tugged.....the last time I thought that I would be the first person in medical history to have their jaw pulled out of their body through a vein in the chest.

Dr. Mercer explained that the collar would not separate because my tissue had grown into the cath collar and jammed it up and that he would have to cut open my neck and dissect it out. Well, to make a long story even longer, after 40 minutes of snipping, cutting and more tugging it was out. I told him I wanted to see it so he went and retrieved it from the biohazard trash bag. The resident stitched me up and we were free to go.....yeah!!!

Off to Westroads so Sandy could go to Van Mauer's to shop for a wedding outfit for our son Chris' wedding next month. I waited in the car and slept for an hour and when Sandy returned, she asked me what was on my shirt. Yep, it was blood....the incision had a lump under it the size of a goose egg. Now I am a rather astute observer of my body and my observation told me that something was wrong. A quick call to the Lied Center and we were on our way back as fast as we could go in the afternoon traffic. We were met by the resident doc who checked things out to make sure that the jugular was o.k. and then removed the blood and redressed the wound

We grabbed a quick sandwich and it was off to Kearney arriving back just in time to settle in to watch the Broncos beat the Ravens.....a perfect ending to a not so perfect day.

Thursday, October 05, 2006

Back at Work

I went back to HMS...half days for a couple of days...and now full-time starting tomorrow. I think that Dan and I can both agree that health care is not my avocation. Most medical things kind of "creep me out" and I'm not very patient. So it was nice to be back at school where everyone seemed glad to see me and do something that I am good at.

A concern is that I am working in a germ factory and Dan's immunity is knocked down. The hospital said that I need to do plenty of hand washing. Some people think that maybe I need to change out of my germy school clothes in the garage before I go in the house. Others have taken it a step further and suggested we have a fire pit to burn my school clothes and I just continuously buy new clothes. HASMAT suits have also been suggested....but I don't know if I wear them at school or at home.

Dan is doing well. I think we would like things to progress more quickly, but actually everything has improved...the last hold-out is leg swelling which is good if he keeps the support hose (TEDS) on and keeps his legs elevated. On Monday we are going back to UNMC and see what they think about it all.

Note: We were a part of the UNMC Transplant Team's record setting month. They did 37 transplants during the month of September.

Friday we are going to the Alma Homecoming/Parents' Night and staying with Chris and Sara. Of course, Sadie is going too. We will all wear our Cardinal red.

Sunday, October 01, 2006

A Good Week-end

I am happy to report we've had a good week-end. The medical problems are settling down...the anti-nausea medicine helps and Dan can eat now, the wound is not "leaking" so much, and the Teds support hose and foot elevation has helped the leg swelling.

This week-end we celebrated his birthday some, he talked to Julesburg friends on the phone, people have brought by food, Chris came over to watch the NU game (good thing Dan doesn't have heart problems), we watched Ryan play soccer, we drove around Cottonmill Park with the dog,...and it was a nice week-end.

So we will just keep at it. Thank you for your support. It means a lot to us.